Last week I talked with Logan's trach nurse at UNC and convinced her that Logan was ready for trials off of the vent. She went for it, and sent the orders to the nursing company so that Logan's nurses could do the trials. That was the best convincing that I have ever done. He was so ready to come off that vent some during the day. Logan has gotten so much stronger than what he use to be. He has changed his vent settings on his own. He doesn't need all of the pressure of the vent or the breaths. He does most of the work on his own, except when he is asleep.
Trials are going great. We are suppose to put a thermovent on his trach when we do these trials. A thermovent helps keep the humidity in his trach, and allows him to still breathe through it. Logan hates these thermovents! Without one, he can do 20-30 minutes off the vent, but with the thermovents, he won't do more than 15 minutes before he is mad. But, today we tried a different kind of thermovent, is he likes this one a lot better, and stayed off the vent 45 minutes today. GOOO LOGIE!
Weight gain is still going great. Logan is up to 19 lbs 10 oz and showing every bit of it!
PT went really good last week. Kristin, Logan's PT got him to hold his head up and turn it left and right with minimal support for 30 seconds. Well, since then, I have been sitting him up on the couch and Logan has been putting his head forward and holding it up on his own without any support. Months ago he never would have tolerated this. It's so amazing to see the progress that he has made just in the past few weeks. He is one amazing little boy.
We go to Chapel Hill next week for Logan's 3 month check up with pulmonary and ENT. I'm excited for them to see the progress he is making. Logan could possibly be having a swallow study and a passy muir valve trial when we go. Wish us luck!
Trials are going great. We are suppose to put a thermovent on his trach when we do these trials. A thermovent helps keep the humidity in his trach, and allows him to still breathe through it. Logan hates these thermovents! Without one, he can do 20-30 minutes off the vent, but with the thermovents, he won't do more than 15 minutes before he is mad. But, today we tried a different kind of thermovent, is he likes this one a lot better, and stayed off the vent 45 minutes today. GOOO LOGIE!
Weight gain is still going great. Logan is up to 19 lbs 10 oz and showing every bit of it!
PT went really good last week. Kristin, Logan's PT got him to hold his head up and turn it left and right with minimal support for 30 seconds. Well, since then, I have been sitting him up on the couch and Logan has been putting his head forward and holding it up on his own without any support. Months ago he never would have tolerated this. It's so amazing to see the progress that he has made just in the past few weeks. He is one amazing little boy.
We go to Chapel Hill next week for Logan's 3 month check up with pulmonary and ENT. I'm excited for them to see the progress he is making. Logan could possibly be having a swallow study and a passy muir valve trial when we go. Wish us luck!
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