We are on our way home from the beach and it was bittersweet! The second day we were there I was worried that Logan couldn't tolerate the salty, humid air but after breathing treatments around the clock and lots of chest PT, his secretions finally thinned out. Thank God we took nurse Lynn with us. She was a life saver and allowed Brian and I to get some sleep. Monday we took Logan out to the pool. At first he really hated being outside. He got something in his eye and it was watering and swollen and was miserable from that. Tuesday we kept Logan indoors and it helped clear his eye up and was a happy little boy. Wednesday morning we took Logan to the beach. It was much cooler than the other mornings. I've never seen him happier. I swear if he could walk we would never get him off the beach. Thursday morning we took Logan out to the beach again. We took family pictures and let him check everything out. He was out by the pool from 11am to 4pm and enjoyed it so much. He hated the water so much! Friday we took Logan out to the pier and let him look at the fish that people were catching and let him look at the ocean.
All of Logan's first cousins were with him a few days and you can really tell that he loves being around them. He takes in everything that they do....literally. The other day Logan was trying to pick cousin Emma's nose!
The trip couldn't be more perfect. At first I was very timid about having him out in public and the stress of something going wrong. Logan can change at the drop of a hat, and his secretions are still very copious at times. But, we will take the challenges as they come. Logan needs to get out and see the world and I won't be the one to stop him.
We are looking forward to going back to the beach again next year :)
Logan Jay Forbis was born on 2/6/12 with a rare neuromuscular disease called Myotubular Myopathy. The past 8 months have been full of ups and downs, but now that Logan is trached and is on the vent 24/7, he quality of life is much better. We are blessed with an amazing little boy!
Saturday, June 22, 2013
Little beach bum
Sunday, June 16, 2013
2nd father's day
We got down to the beach yesterday afternoon and it wasn't too bad getting Logan down here. He did get really dry being off the humidifier for so long and did get a few plugs. We had to use lots of saline to get Logan thinned out. Once we got to the beach house Logan was ready to go! He was so wild but it was great seeing him happy in a different place. :)
Today was a different story. Logan woke up happy but was very junky, even after treatments all night. Its a new climate and he's trying to adjust. Once he was clear we took him, the vent, and humidifier to the pool at our beach house. Logan was fine but started rubbing his eyes and fell asleep. When he woke up he was a mess. Thick secretions, blood coming from his trach, and a fire red eye. He brought him in and it probably took 2 hours to get him settled. His eye is still very irritated but hopefully will be better by morning. Overall, it was a great fathers day for Brian. When we were out by the pool Brian wouldnt leave Logan's side. He's such a attentive, caring daddy. We are so blessed to have that <3