We are on our way home from the beach and it was bittersweet! The second day we were there I was worried that Logan couldn't tolerate the salty, humid air but after breathing treatments around the clock and lots of chest PT, his secretions finally thinned out. Thank God we took nurse Lynn with us. She was a life saver and allowed Brian and I to get some sleep. Monday we took Logan out to the pool. At first he really hated being outside. He got something in his eye and it was watering and swollen and was miserable from that. Tuesday we kept Logan indoors and it helped clear his eye up and was a happy little boy. Wednesday morning we took Logan to the beach. It was much cooler than the other mornings. I've never seen him happier. I swear if he could walk we would never get him off the beach. Thursday morning we took Logan out to the beach again. We took family pictures and let him check everything out. He was out by the pool from 11am to 4pm and enjoyed it so much. He hated the water so much! Friday we took Logan out to the pier and let him look at the fish that people were catching and let him look at the ocean.
All of Logan's first cousins were with him a few days and you can really tell that he loves being around them. He takes in everything that they do....literally. The other day Logan was trying to pick cousin Emma's nose!
The trip couldn't be more perfect. At first I was very timid about having him out in public and the stress of something going wrong. Logan can change at the drop of a hat, and his secretions are still very copious at times. But, we will take the challenges as they come. Logan needs to get out and see the world and I won't be the one to stop him.
We are looking forward to going back to the beach again next year :)
Logan Jay Forbis was born on 2/6/12 with a rare neuromuscular disease called Myotubular Myopathy. The past 8 months have been full of ups and downs, but now that Logan is trached and is on the vent 24/7, he quality of life is much better. We are blessed with an amazing little boy!
Saturday, June 22, 2013
Little beach bum
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