We all know by now that traching Logan saved his life. If it weren't for this trach, Logan would be critical right now. It all started on Monday. I myself was very under the weather. I was running a fever, and really congested, so I stay out of work. I went in to the living room were I know Logan would be with his home health nurse, and there laid Logan on the couch, fast asleep at a time that he is usually "wide open". Logan was sick. That began the battle. Monday Logan did a lot of sleeping, and had copious amounts of secretions. Tuesday was way worse. Logan woke up with a fever, he was pale, and requiring o2. We took him to the pediatrician and they said he had a double ear infection and put Logan on antibiotics for 10 days. Tuesday night I was very busy trying to keep Logan clear with breathing treatments and chest PT. When I went to bed he was very restless but his lungs were clear. I was exhausted. I didn't really have time to take care of myself because I was too busy taking care of Logan. I took some cough syrup and went to bed. Wednesday morning was total chaos. Nurse Rene came in at 7am to a very sick little boy. Logan was cold, and crying, and Rene just picked him up and wrapped him in a blanket and cuddled him. After that, things were kind of blurry. All I remember is Rene was doing very aggressive chest PT, Logan was on 4 1/2 liters of oxygen and still desatting into the 70s. We did a emergency trach change, which changed his sats a little but not enough to get him in the high 80s. We called 911, and packed everything up. Logan was pretty unresponsive, sweating, white as a sheet, and didn't look good at all.
We got him in the ER and they did a chest xray which looked good, bloodwork, and a specimen out of his trach. He was admitted into the PICU. They decided to keep him on his home vent and try not to make any adjustments. He was given a dose of Rocephin for the ear infection, and didn't want to start any other antibiotics until the trach culture came back. Well about 5pm we were suctioning Logan's trach and he started desatting into the 70s again and after putting him back on the vent, Logan was white as a ghost and not responding. After bagging him for a few minutes we decided to do another emergency trach change and put him on the hospital vent. They did a stat chest xray and showed pneumonia in his lower left lung. Vancomycin and Zosyn were started last night.
Today Logan's xray looked worse. It showed a partial collapsed left lung. Logan is not Logan. It breaks my heart to see him hurting and in such discomfort, and there's not much I can do to fix it. I hate that feeling. He is so weak, he can barely crack a smile today. I hope tomorrow brings more energy for him. We started back his bolus feeds tonight and he handled it like a champ, so hopefully he will have more energy tomorrow. Keep those prayers coming. I'm afraid that this illness has really set Logan back. We were suppose to go for his renal ultrasound and swallow study tomorrow, but of course that's not going to happen.
On a lighter note, I got a call from the Urologist on Tuesday, that Logan has great testosterone levels, so those testicles are in there somewhere! Once we have the ultrasound done we will be able to schedule surgery along with the bronch.
Thursday, March 28, 2013
Thursday, March 14, 2013
A whole new meaning to Dr. Mom
They say that mom knows it all. That we go with our instincts and do what we need to do. Well today was a true testament to that.
I was sitting in the floor with Logan changing his diaper. When I sat him up to move him, he did this huge coughing number followed by a very odd look on his face. I sat him up in his chair and suctioned him out, and proceeded to start his feeding. I sat down beside him and all of the sudden his pulse ox was going off and he was desatting down to 88%. His face was very flushed, he was sweating a lot, his heart rate shot up, and his vent settings started to change. At this point, I'm in Dr. Mom mode. Logan has this very blank, almost freaked out look on his face. Oh God, his lung was collapsed.
I started giving him Xoponex inhaler to open up his lungs, then I gave him a 3% saline treatment to try and loosen everything up in his lungs. I did this twice and then put Logan on his stomach and did chest PT like crazy to knock whatever had plugged him up loose. Thank God after about 15 minutes of this Logan's sats and vent settings started coming up and we have avoided a trip to the hospital.
Logan is doing much better now. He's watching Mickey Mouse and fighting sleep. :)
These are very scary moments indeed, but when it comes to my baby, I will do my everything to make sure he is ok.
I was sitting in the floor with Logan changing his diaper. When I sat him up to move him, he did this huge coughing number followed by a very odd look on his face. I sat him up in his chair and suctioned him out, and proceeded to start his feeding. I sat down beside him and all of the sudden his pulse ox was going off and he was desatting down to 88%. His face was very flushed, he was sweating a lot, his heart rate shot up, and his vent settings started to change. At this point, I'm in Dr. Mom mode. Logan has this very blank, almost freaked out look on his face. Oh God, his lung was collapsed.
I started giving him Xoponex inhaler to open up his lungs, then I gave him a 3% saline treatment to try and loosen everything up in his lungs. I did this twice and then put Logan on his stomach and did chest PT like crazy to knock whatever had plugged him up loose. Thank God after about 15 minutes of this Logan's sats and vent settings started coming up and we have avoided a trip to the hospital.
Logan is doing much better now. He's watching Mickey Mouse and fighting sleep. :)
These are very scary moments indeed, but when it comes to my baby, I will do my everything to make sure he is ok.
Sunday, March 10, 2013
Logan continues to "bloom"
Every now and then I get down about everything I have to see Logan go through. Sometimes searching for inspirational quotes gives me the push I need to overcome those feelings. Today, I ran across this quote:
"We, the ones who are challenged, need to be heard. To be seen not as a disability, but as a person who has, and will continue to bloom. To be seen not only as handicap, but as a well intact human being." -Robert M. Hensel
This is a beautiful quote and describes Logan so well. How could I not smile reading this?
Over the past week, Logan has really shown himself. His head control is getting better and better and his back and spine are getting stronger. Using Logan's theratogs, it really straightens up his scoliosis and helps is kyphosis (hunch back). Yesterday I got the brilliant idea to put Logan in his theratogs and put him in his bumbo seat we have never got to use. He did fabulous and sat by himself and held up his head for 2 minutes without our help. It was a proud moment for Brian and I. :)
The next few months are going to be pretty crazy for us. Logan has lots of appointments coming up, we are switching to a new home medical equipment company, and trying to tweak some things that we think he would really benefit from. We are excited to push him and see what he is capable of doing. We will keep everyone as updated as we can!
Much love <3
"We, the ones who are challenged, need to be heard. To be seen not as a disability, but as a person who has, and will continue to bloom. To be seen not only as handicap, but as a well intact human being." -Robert M. Hensel
This is a beautiful quote and describes Logan so well. How could I not smile reading this?
Over the past week, Logan has really shown himself. His head control is getting better and better and his back and spine are getting stronger. Using Logan's theratogs, it really straightens up his scoliosis and helps is kyphosis (hunch back). Yesterday I got the brilliant idea to put Logan in his theratogs and put him in his bumbo seat we have never got to use. He did fabulous and sat by himself and held up his head for 2 minutes without our help. It was a proud moment for Brian and I. :)
The next few months are going to be pretty crazy for us. Logan has lots of appointments coming up, we are switching to a new home medical equipment company, and trying to tweak some things that we think he would really benefit from. We are excited to push him and see what he is capable of doing. We will keep everyone as updated as we can!
Tuesday, March 5, 2013
Contagious smiles
Logan is doing fabulous. We are trying to get appointments set up over the next month. Logan is having a swallow study on March 29th, we are meeting the Urology soon to discuss surgery to have his testicles pulled down during his bronchoscopy, and he is also having a sleep study to tweek Logan's vent settings during sleep. They think he could be over ventilated.
We cut back Logan's feeds last week and spaced them out more because Logan has gained a good amount of weight since September. It just goes to show how well he is doing. Before he was trached weight gain was a huge struggle, and now, he's gaining it too fast!
Overall, things are going great. Logan is doing very well. He benefits so much from PT and OT and smiles all the time. We are working on getting Logan use to his ipad and trying to get him to do some sign language, which he's not interested in. He's more interested in trying to talk :)
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