We all know by now that traching Logan saved his life. If it weren't for this trach, Logan would be critical right now. It all started on Monday. I myself was very under the weather. I was running a fever, and really congested, so I stay out of work. I went in to the living room were I know Logan would be with his home health nurse, and there laid Logan on the couch, fast asleep at a time that he is usually "wide open". Logan was sick. That began the battle. Monday Logan did a lot of sleeping, and had copious amounts of secretions. Tuesday was way worse. Logan woke up with a fever, he was pale, and requiring o2. We took him to the pediatrician and they said he had a double ear infection and put Logan on antibiotics for 10 days. Tuesday night I was very busy trying to keep Logan clear with breathing treatments and chest PT. When I went to bed he was very restless but his lungs were clear. I was exhausted. I didn't really have time to take care of myself because I was too busy taking care of Logan. I took some cough syrup and went to bed. Wednesday morning was total chaos. Nurse Rene came in at 7am to a very sick little boy. Logan was cold, and crying, and Rene just picked him up and wrapped him in a blanket and cuddled him. After that, things were kind of blurry. All I remember is Rene was doing very aggressive chest PT, Logan was on 4 1/2 liters of oxygen and still desatting into the 70s. We did a emergency trach change, which changed his sats a little but not enough to get him in the high 80s. We called 911, and packed everything up. Logan was pretty unresponsive, sweating, white as a sheet, and didn't look good at all.
We got him in the ER and they did a chest xray which looked good, bloodwork, and a specimen out of his trach. He was admitted into the PICU. They decided to keep him on his home vent and try not to make any adjustments. He was given a dose of Rocephin for the ear infection, and didn't want to start any other antibiotics until the trach culture came back. Well about 5pm we were suctioning Logan's trach and he started desatting into the 70s again and after putting him back on the vent, Logan was white as a ghost and not responding. After bagging him for a few minutes we decided to do another emergency trach change and put him on the hospital vent. They did a stat chest xray and showed pneumonia in his lower left lung. Vancomycin and Zosyn were started last night.
Today Logan's xray looked worse. It showed a partial collapsed left lung. Logan is not Logan. It breaks my heart to see him hurting and in such discomfort, and there's not much I can do to fix it. I hate that feeling. He is so weak, he can barely crack a smile today. I hope tomorrow brings more energy for him. We started back his bolus feeds tonight and he handled it like a champ, so hopefully he will have more energy tomorrow. Keep those prayers coming. I'm afraid that this illness has really set Logan back. We were suppose to go for his renal ultrasound and swallow study tomorrow, but of course that's not going to happen.
On a lighter note, I got a call from the Urologist on Tuesday, that Logan has great testosterone levels, so those testicles are in there somewhere! Once we have the ultrasound done we will be able to schedule surgery along with the bronch.
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