, everyone was impressed with Logan's progress. Progress....something I have always been afraid that doctors would never tell us. Special infant care clinic recommended some different positions to help keep Logan's spine as straight as possible, and we talked about possible seating devices. I will talk with Logan's physical therapist next week and see what she recommends.
Nutrition was pleased with his weight gain. He is 15 lbs 3 oz! He is slowly getting on track with his weight. They want to see him in the 10th percentile. He's not using all of his energy to breathe anymore, so those extra calories are helping him move more, and thank you Jesus, it's working.
Pulmonary was very pleased with Logan and how well he is doing. She is happy that he is off of oxygen and has his cuff down. We may possibly change his trach to a shiley brand. It's easier to get through our home health supplier and less expensive than the bivona. She doesn't want to make any changes to the vent for the next 3 months. She wants to give him the opportunity to grow and get stronger. I'm definitely ok with that. I don't want to put anymore strain on his body than necessary. But she does want us to do 5 minute trials off of the vent to make him work a little bit. He can tolerate it. We have tried. :) In the next few months we will be considering a swallow study also.
Logan also had a new gtube put in, since he's getting so bad. Overall, it was a great doctors appointment, which use to never happen! We are over the bad and moving forward! We are going to make sure this amazing little boy has everything he needs to grow and thrive!
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