The past few weeks have been a little crazy. Logan has had lots of appointments and we took our first camping trip.
We saw Dr. Southerland (Urology) a few weeks ago. He had ordered a renal ultrasound to make sure that Logan's kidneys and bladder were working good. Ultrasound showed that Logan's right kidney was full but his bladder was empty. Dr. Southerland wants it rechecked in 6 months, so I don't think he was too concerned. Logan had some blood work done back in march to make sure he is producing testosterone. Luckily, after a HCG shot, his testosterone levels shot up, so we know that testicles are there! His surgery is scheduled for May 13th, and the bronchoscopy will be done at the same time. I don't think Logan will have such a hard time recovering from surgery now that he has his trach. :) We are hoping to only be in the hospital for 24 hours.
Logan also had a swallow study the same day. It didn't go like I thought that it would, to say the least. The first taste he got was a spoonful of food. He has only had taste. I know that Logan was overwhelmed by the amount of food in his mouth. He did however swallow, but couldn't complete the swallow. It sat in the back on his throat and was eventually aspirated. He was given more of a liquid and was able to get more of that down, but it is hard when Logan is on the vent. The pressure from the vent pushes up whatever is in his throat, and can push it up through his nose.
After the swallow study, it was recommended to see Dr. Alexander, who is Logan's physical medicine rehab doctor. He is amazing, and can get us whatever we need. We go see him on May 7th, so we can get recommendations for speech and vital stim.
Logan was put on Amoxicillin last Thursday for yet another ear infection. Man, I tell you, we can definitely tell when he is getting sick. He gets thick secretions, and lots of them. It's much harder to keep him clear. Anyways, Friday he started puking randomly when he was getting fed, and it continued throughout the weekend. Finally on Wednesday I had enough of it. Brian and nurse Rene brought him to the ER and we found out that he is allergic to Amoxicillin. We got his antibiotic switched to Biaxin and he is doing great with it. No spitting up since then.
Last weekend we took Logan camping with no nursing. Just Brian, Logan, and myself. It felt good to be a family without nursing, although, I love our nurses and don't know what I would do without them! Of course Logan was not feeling the greatest, so it was a little rough at night time, but overall, it was a successful trip. We are looking forward to the next one.
Logan went to the eye doctor today and had a great check up. Dr. Young said that Logan is near sighted, and may or may not need glasses later on. There are no scratches on his corneas and he said that Logan's eye lashes are soft and he is not concerned with them rubbing on his eye balls. He said that they should grow out as Logan continues to grow.
Logan got his vest a few weeks ago. The vest is used for chest PT and really works for him! He hated it at first, but now he goes to sleep and makes noises when it is shaking him :)
Overall, it has been a great few weeks, and Logan is doing great!




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