Logan had a rough night last night. He was very junky all night and in to this morning. The night nurse did 2 breathing treatments and when the day nurse Stephanie came in this morning he was still junky. She did a breathing treatment at 8:30 am and again at 10:30am and his secretions were so thick we weren't getting a lot out. After the treatments and chest pt, and having to put him on oxygen for dropping so much, I decided to call the peds attending at Moses Cone. They thought it would be wise to have him cone in and be transported by ambulance. Once we got him in the emergency room, he got a chest xray which looks good, and trach cultures which usually takes 24 hours to grow so we should know tomorrow. Logan is still on anywhere from 0.5-2 liters of oxygen and is requiring lots more breathing treatments and chest pt. Earlier tonight we noticed a bluish green tint on his gauze around his trach, which is usually a sign of pseudonymous....a type of infection. But the want to wait until the culture comes back to see if it's worth being treated with IV antibiotics or a nebulizer antibiotic or something through his feeding tube.
He took a good 2 hour nap today and woke up in a somewhat better mood, but he is still not the happy Logan we know. Whatever it is, we hope they figure it out and get it treated soon. Thanks for all the prayers. We know our little warrior will pull through this minor bump in the road.
Logan Jay Forbis was born on 2/6/12 with a rare neuromuscular disease called Myotubular Myopathy. The past 8 months have been full of ups and downs, but now that Logan is trached and is on the vent 24/7, he quality of life is much better. We are blessed with an amazing little boy!
Sunday, December 2, 2012
A trip to the ER
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